{"id":13600,"date":"2022-09-13T09:15:08","date_gmt":"2022-09-13T13:15:08","guid":{"rendered":"https:\/\/dev.ccla.org\/non-classe\/confidentialite-et-soins-de-sante-virtuels-lancement-du-rapport\/"},"modified":"2026-04-23T14:09:38","modified_gmt":"2026-04-23T18:09:38","slug":"confidentialite-et-soins-de-sante-virtuels-lancement-du-rapport","status":"publish","type":"post","link":"https:\/\/dev.ccla.org\/fr\/vie-privee\/confidentialite-et-soins-de-sante-virtuels-lancement-du-rapport\/","title":{"rendered":"Confidentialit\u00e9 et soins de sant\u00e9 virtuels : lancement du rapport"},"content":{"rendered":"

13 septembre 2022 \u2014 La CCLA est ravie de lancer le rapport Services de sant\u00e9 virtuels au Canada : sentiers num\u00e9riques, donn\u00e9es non identifi\u00e9es et implications sur la vie priv\u00e9e<\/a><\/em>. R\u00e9dig\u00e9 par une \u00e9quipe dirig\u00e9e par la chercheuse principale Dre Sheryl Spithoff (Women\u2019s College Hospital), et incluant Brenda McPhail, directrice de la vie priv\u00e9e du CCLA, ce rapport est une \u00e9tude qualitative de l\u2019industrie des soins virtuels en pleine expansion au Canada. <\/p>\n

Cette \u00e9tude, financ\u00e9e par le Programme de subventions de contributions du Commissaire \u00e0 la protection de la vie priv\u00e9e du Canada, a examin\u00e9 le paysage de la vie priv\u00e9e sur les plateformes de soins de sant\u00e9 virtuelles \u00e0 travers une s\u00e9rie d\u2019entrevues qualitatives avec des employ\u00e9s d\u2019entreprises disposant de plateformes de soins virtuels, ainsi que des universitaires, des consultants ou des contractuels tiers de l\u2019industrie, ainsi qu\u2019une analyse d\u00e9taill\u00e9e des lois pertinentes sur la vie priv\u00e9e applicables aux visites de soins par ordinateur sur les plateformes commerciales.
\nLes principales constatations incluent :
\n\u2022 De nombreuses entreprises de la plateforme de soins virtuels (VCP) semblent s\u2019engager dans une collecte g\u00e9n\u00e9ralis\u00e9e, une utilisation commerciale et, dans certains cas, le partage d\u2019informations d\u2019inscription\/inscription (par exemple, noms, adresses courriel) et d\u2019autres informations identifiantes (par exemple, adresses IP) recueillies lorsque les patients interagissent avec le VCP commercial.
\n\u2022 Ces pratiques de donn\u00e9es peuvent \u00eatre particuli\u00e8rement probl\u00e9matiques si les VCP commerciaux ne fournissent qu\u2019un seul type de service de sant\u00e9 (par exemple, des services psychiatriques ou de pr\u00e9vention du VIH), car l\u2019information peut r\u00e9v\u00e9ler la nature du probl\u00e8me de sant\u00e9 d\u2019un patient.
\n\u2022 Certaines entreprises VCP cr\u00e9ent, utilisent et partagent aussi des informations de sant\u00e9 non identifi\u00e9es. Les recherches montrent que ces pratiques de donn\u00e9es peuvent exposer les patients \u00e0 des pr\u00e9judices li\u00e9s \u00e0 la perte de vie priv\u00e9e, au microciblage \u00e0 des fins commerciales et \u00e0 la discrimination envers les personnes et communaut\u00e9s marginalis\u00e9es. Cependant, la l\u00e9gislation f\u00e9d\u00e9rale et provinciale offre peu de protections aux donn\u00e9es d\u00e9sidentifi\u00e9es.
\n\u2022 Les politiques de confidentialit\u00e9 et les conditions d\u2019utilisation des entreprises VCP sont confuses, vagues et ne traduisent pas ad\u00e9quatement comment les donn\u00e9es pourraient \u00eatre utilis\u00e9es en interne ou par des tiers.
\n\u2022 De nombreux VCP commerciaux semblent exiger que les patients acceptent l\u2019utilisation commerciale de leurs donn\u00e9es avant d\u2019acc\u00e9der aux services de sant\u00e9. En raison de la complexit\u00e9 de la juridiction et du manque de directives, il n\u2019est pas clair si cette pratique est conforme \u00e0 la lettre de la loi, mais elle est \u00e9thiquement discutable compte tenu de la sensibilit\u00e9 de l\u2019interaction entre le patient et le syst\u00e8me de sant\u00e9.
\n\u2022 Certaines entreprises de VCP utilisent les donn\u00e9es pour influencer les parcours de soins de sant\u00e9 des patients, dans le but d\u2019optimiser l\u2019adoption des produits d\u2019un partenaire commercial (par exemple, m\u00e9dicaments ou vaccins). Cela peut affecter la qualit\u00e9 des soins et causer des dommages aux patients.
\n\u2022 Comme les entreprises VCP consid\u00e8rent les donn\u00e9es des patients comme un actif propri\u00e9taire, les donn\u00e9es peuvent ne pas \u00eatre accessibles aux entit\u00e9s publiques et \u00e0 but non lucratif pour la recherche et l\u2019am\u00e9lioration du syst\u00e8me de sant\u00e9.<\/p>\n

Lisez le rapport complet <\/a>
\nConsultez le site web du projet<\/a><\/p>\n

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13 septembre 2022 \u2014 La CCLA est ravie de lancer le rapport Services de sant\u00e9 virtuels au Canada : sentiers num\u00e9riques, donn\u00e9es non identifi\u00e9es et implications sur la vie priv\u00e9e….<\/p>\n","protected":false},"author":11,"featured_media":12487,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[309,277],"tags":[],"class_list":{"0":"post-13600","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-surveillance-et-vie-privee","8":"category-vie-privee"},"yoast_head":"\nConfidentialit\u00e9 et soins de sant\u00e9 virtuels : lancement du rapport - CCLA<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_CA\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Confidentialit\u00e9 et soins de sant\u00e9 virtuels : lancement du rapport - 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